State: Tennessee
Chronic Condition:
Interstitial cystitis, pudenda neuralgia
I advocate because of America’s disastrous health care system & because women are shamed, not listened to nor advocated for especially surrounding women’s pelvic health. I hope to curb the stigma surrounding these issues, educate on how insurance and big pharma control doctors and patients’ quality of life and advocate for cannabis in the face of a growing opioid epidemic and dependence.
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Read Patient Stories from The Mighty
Bryan joined the Chronic Disease Coalition in 2019. His primary role focuses on developing social media strategy, content creation and boosting engagement through online interactions.
In addition to social media, Bryan works closely with CDC Ambassadors to develop digital opportunities that raise awareness about chronic diseases and the issues patients face. He hopes to utilize multimedia to stop the stigma surrounding chronic disease and create positive social and political change for chronic patients everywhere.
Contact Bryan at bryan@chronicdiseasecoalition.org
Bryan joined the Chronic Disease Coalition in 2019. His primary role focuses on developing social media strategy, content creation and boosting engagement through online interactions.
In addition to social media, Bryan works closely with CDC Ambassadors to develop digital opportunities that raise awareness about chronic diseases and the issues patients face. He hopes to utilize multimedia to stop the stigma surrounding chronic disease and create positive social and political change for chronic patients everywhere.
Contact Bryan at bryan@chronicdiseasecoalition.org
Recruited by the Chronic Disease Coalition in 2020, Kailey works with ambassadors across the nation to coordinate advocacy efforts, connect coalition members and engage patients in protecting their rights. Her experience in journalism informs her role in empowering patients and their families to tell their own stories. Kailey’s people-first approach to advocacy and communications follows her in her everyday work for a public affairs firm in Bend, Oregon.
Contact Kailey at kailey@chronicdiseasecoalition.com
Recruited by the Chronic Disease Coalition in 2020, Kailey works with ambassadors across the nation to coordinate advocacy efforts, connect coalition members and engage patients in protecting their rights. Her experience in journalism informs her role in empowering patients and their families to tell their own stories. Kailey’s people-first approach to advocacy and communications follows her in her everyday work for a public affairs firm in Bend, Oregon.
Contact Kailey at kailey@chronicdiseasecoalition.com
Lindsey joined the Chronic Disease Coalition in early 2017 as the digital advocacy director. Her background in outreach and communications helps her successfully connect and develop relationships with patients and their families. Lindsey believes grassroots advocacy is essential to raising awareness about the 133 million Americans who live with chronic diseases.
Contact Lindsey at lindsey@chronicdiseasecoalition.com.
Lindsey joined the Chronic Disease Coalition in early 2017 as the digital advocacy director. Her background in outreach and communications helps her successfully connect and develop relationships with patients and their families. Lindsey believes grassroots advocacy is essential to raising awareness about the 133 million Americans who live with chronic diseases.
Contact Lindsey at lindsey@chronicdiseasecoalition.com.
Kara Hansen joined the Chronic Disease Coalition in late 2015 and became assistant director in early 2016.
As assistant director of the Coalition, she interacts with community partners and individual members, assists with government affairs and oversees website content and media relations.
Her professional background includes a decade working as a print journalist in the Pacific Northwest followed by several years as an account executive at a communications firm in Portland, Oregon. She also dedicates time to volunteering, a commitment that began in her youth, when she served as a peer educator for the Cascade AIDS Project, and currently includes working on a steering committee for a gratitude-oriented 501c(3) nonprofit organization in Portland.
Contact Kara at kara@chronicdiseasecoalition.com.
Kara Hansen joined the Chronic Disease Coalition in late 2015 and became assistant director in early 2016.
As assistant director of the Coalition, she interacts with community partners and individual members, assists with government affairs and oversees website content and media relations.
Her professional background includes a decade working as a print journalist in the Pacific Northwest followed by several years as an account executive at a communications firm in Portland, Oregon. She also dedicates time to volunteering, a commitment that began in her youth, when she served as a peer educator for the Cascade AIDS Project, and currently includes working on a steering committee for a gratitude-oriented 501c(3) nonprofit organization in Portland.
Contact Kara at kara@chronicdiseasecoalition.com.
Appointed executive director of the Chronic Disease Coalition in 2016, Scott brings decades of personal experience and chronic disease advocacy to the CDC’s mission of protecting patients’ rights.
Scott has had Type 1 diabetes for 35 years, has had rheumatoid arthritis for nearly 20 years and is a cancer survivor. His professional background includes service as an elected state legislator where he was heavily engaged in health care legislation and committee work.
Today, in addition to his duties with the CDC, Scott is also a communications professional based in Portland, Oregon.
Appointed executive director of the Chronic Disease Coalition in 2016, Scott brings decades of personal experience and chronic disease advocacy to the CDC’s mission of protecting patients’ rights.
Scott has had Type 1 diabetes for 35 years, has had rheumatoid arthritis for nearly 20 years and is a cancer survivor. His professional background includes service as an elected state legislator where he was heavily engaged in health care legislation and committee work.
Today, in addition to his duties with the CDC, Scott is also a communications professional based in Portland, Oregon.
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A message from Executive Director Scott Bruun on COVID-19
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