Living with Lupus has significantly affected my daily life. I have experience periods of fatigue, pain, weakness, and other symptoms that can make everyday activities challenging. Over the years, I have educated myself about Lupus and learned to recognize the early signs of a flare-up so I can respond before my symptoms start showing up. I’m committed to live as normally as possible and not allow the fear of a flare-up to prevent me from working, participating in activities, or fulfilling my responsibilities. However, there are days when I must adjust my plans, slow down, or prioritize. Lupus has taught me to listen to my body, pace myself, and make my health a priority. Despite these challenges, I remain active, involved in my community, and committed to living a productive and fulfilling life while managing Lupus.
I advocate for Lupus because I understand firsthand how challenging it can be to live with a chronic, often invisible illness. I am passionate about making a positive impact by raising awareness, educating others about Lupus, and helping those living with the disease feel seen, heard, and supported. I am committed to working alongside fellow advocates and policymakers to help build a healthcare system that is more equitable, accessible, and responsive to the needs of people living with chronic diseases. By sharing my experience, I hope to encourage early diagnosis of lupus, support research, and inspire others to become their own best health advocates. My goal is to help create a stronger, more informed lupus community and remind others that, despite the challenges of this disease, we can continue to live, serve, lead, and make a meaningful difference. I’ve completed a Peer Lupus Educator program and I’m a Community Health Worker.