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Change the chronic disease dialogue in your community today!

Contact Leaders

Engaging with federal and state leaders is one of the best ways to support the chronic illness community.

Use your voice to spread awareness for important issues. We are always looking for patients who can share their experiences to evoke change.

Stay connected to learn more about important policy issues and opportunities to support patient rights.

February 19, 2025

There are more than 60 340B bills working their way through state legislatures across the... Continue reading »

February 14, 2025

We are off to the races, with almost all states in legislative session and filing,... Continue reading »

February 5, 2025

People who are managing a rare disease have a unique view of the healthcare system.... Continue reading »

January 22, 2025

By Amy Steinmann, CDC Team MemberI entered the hospital to give birth to my second... Continue reading »