As we approach the three-year anniversary of the first diagnosed case of COVID-19 in the United States, we continue to see people suffer from long COVID and the significant impacts to their daily lives. From brain fog to chronic fatigue, long-haulers are now considered the newest wave of chronic disease patients.
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Chronic kidney disease patients and those with End Stage Renal Disease (ESRD) face serious challenges each and every day.
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Are you new to your advocacy journey? Or maybe you’re a long-time advocate who just wants to brush up on your skills?
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The brain is part of the body – but too often, we treat mental health as a secondary consideration.
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Especially for those managing a chronic disease, getting to “wellness” is more than a doctor’s visit and proper medication. Wellness is also the everyday choices we make to take care of ourselves. This is especially important for Americans living with chronic illnesses.
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Every July, the country recognizes Chronic Disease Month and the progress made by and for patients. This is a key time to amplify the experiences of those living with chronic disease and recommit to advocating for patient-centered policymaking.
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Chronic disease impacts nearly half, or 133 million, Americans—with only 1 in 10 having a rare disease.
Rare disease patients often face a variety of representation obstacles, but the rarity of their condition doesn't make the impacts of bad health care policy any less real. In fact, it can easily exacerbate it.
Hear from rare disease patients and advocates about what you can do to elevate rare disease voices and protect patient access in legislatures across the country.
Staffing shortages, increased costs, new mandates, training requirements and more are all impacting the health care system. Lack of trained professionals to care for a growing chronic disease community is a scary reality that we must work together to address. Above all, we need to ensure providers can give the highest quality treatment to their patients.
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Open enrollment is around the corner. At the Chronic Disease Coalition, we advocate regularly for policy solutions to harmful utilization management practices that make treatment less affordable and accessible to patients. We work hard to change the way chronic patients are covered by their insurance.
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We’re celebrating a year of powerful advocacy!
Join legislators, advocates, partners and others to learn more about what happened in 2023 and where the Coalition's policy priorities will be for 2024 in this special end of year Chronic University session.
We look forward to advocating with you in the new year.