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Giusiana Prosser

Giusiana Prosser

Andersen Tawil Syndrome +5

Living with a rare disease has reshaped every part of my life. Daily routines that should be filled with other things are filled with appointments, symptom management, and constant rest just to maintain stability. I’ve faced hospitalizations, mobility challenges, and the emotional toll of…

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Claire Forsythe

Claire Forsythe

Mast Cell Activation Syndrome +2

I went from athletic and high achieving to exhausted. I'd never had allergies, and now I carry an Epipen. My diagnoses changed my life in many ways, but most significantly, I've developed a strong passion for advocacy that now guides me through each day.Advocacy is what got me to where I am now. If…

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Kaye Peterson

Kaye Peterson

Type 1 Diabetes +2

I’m from a family of seven Type 1 Diabetics, so I’ve been exposed to diabetes since 1966, when my brother was diagnosed at a year old. I saw my mother wring urine from his wet diaper to get the needed 5 drops for urine testing. When I was diagnosed in 1983, technology appeared in the form of a…

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