Policy Issues
Visit our policy page to dive in to the issues that impact chronic disease patients.
Learn moreLegislation in the States
People managing chronic disease are affected every day by state-level policy, and that is where the majority our focus is. The Chronic Disease Coalition is actively tracking priority legislation in every state, and you can see which states have active legislation on our top issues. (Read about our policy priorities here).
Want to know more about what’s happening in your state and across the nation? Join the fight here and you’ll get the information you need, when you need it.
You can also go straight to our Contact Your Elected Leaders page for an easy way to reach out to your elected officials about key issues.
Policy map
Ambassador Spotlight
Michele Rayes
Hypoparathyroidism
My disease once caused debilitating muscle cramps, throat spasms, and made even simple tasks—like carrying groceries or lifting my child—impossible. I struggled with chronic fatigue, frequent hospitalizations, kidney stones, calcium deposits in my eyes, and more.Four years ago, I was fortunate to…
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Deborah Kofoed
Lupus
At the age of 17 I was diagnosed with Systemic Lupus Erythematosus or SLE. My life became about doctor appointments, tests and finding the right medication regimen. I chose working over college because doing both flared my disease. Fighting lupus and all that comes with it is extremely hard and I…
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Bridget Edwards
Afibrinogenemia
I was diagnosed with Afibrinogenemia when I was just one day old. Afibrinogenemia is a rare form of a Bleeding Disorder in which I am missing Factor 1 (Fibrinogen), which aids in the blood clotting process. I will have this condition for the rest of my life, and I currently receive a prophylactic…
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