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Ambassador Spotlight

Saida Mahoney

Saida Mahoney

Partial Trisomy 8q Duplication Syndrome +4

My disease has caused me to be chronically medically fragile and severely disabled. I struggle with seizures due to my epilepsy and I also have irritable bowel syndrome, dysphagia, autism, speech and language disabilities and more. I have been unable to attend school full time or have strong…

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Ashley Goodrich

Ashley Goodrich

Hypothyroidism +1

I was diagnosed with hypothyroidism in 2012. I had gained a ton of weight. I was fatigued all the time. It felt as if someone had hooked a vacuum up to me and sucked all of the energy out of my body. There were days that I couldn't get out of bed. I had sleep issues which led to chronic headaches.…

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Jodie Eiler

Jodie Eiler

Dysautonomia +10

My health journey has been a long and complicated one, shaped by years of fatigue, pain, and unanswered questions. After years of countless appointments and being told it was only "anxiety," I finally began to uncover the truth behind my symptoms, including autoimmune activity, dysautonomia (POTS,…

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