Jolie Lizana
State: Louisiana
Chronic Conditions: Systemic Sclerosis, Pulmonary Arterial Hypertension, Heart Failure
Living with pulmonary arterial hypertension (PH) is a moment-by-moment coin toss of how you'll feel. Despite the uncertainty, you learn to embrace life.
After losing my career, I found solace in discovering new hobbies, advocating, and cherishing family time. Life is about more than just a career; some of us have the privilege of seeing life from a different, more meaningful perspective that most people will never truly have the ability to appreciate. That's pretty spectacular when you think about it.
My best life is spent with my family and advocating for myself as well as others. My goal is to expose this cloaked disease, help others get a quick diagnosis, and show others that you can live with PH and heart failure.
I advocate because many of us have been, and continue to be, wronged by the health system and societal ignorance. I advocate for showing others how to advocate for themselves.