Jeremy Bevel

My progressive dysautonomia has upended my life over the past 6+ years. Unable to stand or use my limbs without rapid ischemia, pain, and lockup, I'm confined to recliner 20 or more hours/day for relief—ending my career as a heavy equipment operator and plunging us into poverty and bankruptcy. Daily existence is exhausting: constant pain, brain fog, and dependence on others for basics. Social Security Disability Insurance and health insurance denials, fueled by sanitized records, block treatment and stability. The deepest harm is familial—my daughter suffers identical symptoms, my wife developed microvascular brain lesions. Preventable delays have caused irreversible progression, trauma from gaslighting, and generational impact. What was once an active family life is now survival amid isolation and loss with no explanation for any of it.

I advocate because this fight is bigger than one case—it's personal, preventable, and profoundly systemic.  

I advocate for my family: To secure diagnosis, treatment, stability, and benefits that were blocked for years, easing the daily suffering for me, my daughter (with identical symptoms), and my wife.

I advocate to reverse preventable harm: Delays from testing refusals and record erasure accelerated progression, caused financial ruin, trauma, and generational impact—what one accurate test or note could have changed.

I advocate to expose and dismantle the loop: I have documented a playbook of sanitization, omissions, and denials that protects providers/insurers/the Social Security Administration at patients' expense, mirroring gaslighting in Lyme and other dismissed conditions.

I advocate for thousands like me: This isn’t just my story—it's the reality for countless with chronic, rare, or "invisible" illnesses left isolated and erased. This effort can force the accountability that ends the pattern for others.

My advocacy—relentless, forensic, and truth-driven—is about turning lived injustice into lasting change.