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Joyce Fitz

State: New Jersey

Chronic Condition: Shwachman-Diamond Syndrome


My disease has caused me to live with a compromised immune system and bone marrow failure. I also have exocrine pancreatic insufficiency which requires I take multiple pills before I eat. This disease affects my emotional physical and social life. 

I advocate to share my story and raise my voice for those who can’t. I want to influence the younger generation so they can make a change.