Joyce Fitz
State: New Jersey
Chronic Condition: Shwachman-Diamond Syndrome
My disease has caused me to live with a compromised immune system and bone marrow failure. I also have exocrine pancreatic insufficiency which requires I take multiple pills before I eat. This disease affects my emotional physical and social life.
I advocate to share my story and raise my voice for those who can’t. I want to influence the younger generation so they can make a change.