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Engaging with federal and state leaders is one of the best ways to support the chronic illness community.
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Use your voice to spread awareness for important issues. We are always looking for patients who can share their experiences to evoke change.
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Join The Fight
Stay connected to learn more about important policy issues and opportunities to support patient rights.
Learn moreRecent News
Patients First, Progress Together.
The personal and economic burden of chronic disease is much in the news this year.... Continue reading »
When Hope Gets Cut: What the NIH Budget Reduction Means for Medical Innovation and Patient Care
By Hillary Vrba, CDC Team MemberAcademic institutions across the country are bracing for the Trump... Continue reading »
The Identities That Shaped My Path and Fueled My Passion as a Patient Advocate
By Michele Rayes, CDC AmbassadorMy name is Michele. I’m a wife, a mother, a rare... Continue reading »
A Love Letter to Legislators
By Mary Kay Clunies-Ross, CDC Executive DirectorI’ve been looking forward to the Women in Government... Continue reading »