I Found My CKD Diagnosis in a Hospital Form. Now I'm Building Owlfred.
By Julie Crawford, Coalition Ambassador March is National Kidney Month. This year’s focus is on... Continue reading »
News:
Patient Stories
Why Rare Disease Month Matters to All of Us
Rare Disease Month in February and Rare Disease Day on February 28 recognizes the nearly... Continue reading »
How to Support Those with Heart-Related Conditions
My first fainting episode happened under the fluorescent paneled lights of my biology class on... Continue reading »
Living with Rheumatic Heart Disease as an American Teen
Until I was around 12 years old, I was considered a generally healthy kid, with... Continue reading »
Patients First, Progress Together: Reflecting on Our 2025 Impact
As we look at the Chronic Disease Coalition’s 2025 Impact Report, one thing is clear:... Continue reading »
From Patient to Policy Advocate: How My Journey With Chronic Illness Fueled My Passion for Healthcare Equity
Victoria Lopez is a high school senior from Florida and a CDC Ambassador.Hi everyone!My name... Continue reading »
My Story Shows Why We Must Protect Medical Research Funding
There’s been a lot of talk about federal funding cuts – to Medicaid, food assistance... Continue reading »
Finding Your Voice: The Power of Self-Advocacy in Chronic Illness
By Anna BallIt’s back to school, back to work, and back to “everything happening so... Continue reading »
The Identities That Shaped My Path and Fueled My Passion as a Patient Advocate
By Michele Rayes, CDC AmbassadorMy name is Michele. I’m a wife, a mother, a rare... Continue reading »