From Patient to Purpose: My Journey into Advocacy
I have been a patient for decades, but only in the last eight years have... Continue reading »
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Patient Stories
5 Questions with CDC Ambassador Deborah Kofoed
On the day Chronic Disease Coalition (CDC) Ambassador Deborah Kofoed was diagnosed with lupus, her... Continue reading »
Living Limitless: My Battle with IBS, GERD, and the Invisible War Within
By Apollonia Bynum, CDC AmbassadorI am a 38-year-old mom of three who was born and... Continue reading »
5 Questions with CDC Ambassador Emma Jordan
After years of being a medical mystery, Chronic Disease Coalition (CDC) Ambassador Emma Jordan was... Continue reading »
Living a Fulfilling and Intentional Life with Chronic Disease
By Dustin Miller, CDC AmbassadorI was diagnosed with focal segmental glomerulosclerosis (FSGS), a type of... Continue reading »
The Impact of Chronic Disease Social Media Influencers
By Hillary Vrba, CDC Team MemberAutoimmune disease impacts approximately 8% of the U.S. population and... Continue reading »
Why Rare Disease Matters in Healthcare, Even If You Don't Have One
People who are managing a rare disease have a unique view of the healthcare system.... Continue reading »
National Blood Donor Month
By Amy Steinmann, CDC Team MemberI entered the hospital to give birth to my second... Continue reading »
January is Thyroid Awareness Month
By Maureen Sullivan-Tevault, CDC Ambassador and Thyroid Cancer Survivor (total thyroidectomy)January is Thyroid Awareness Month,... Continue reading »