June 2025 Policy Update
We are coming out of the fog of non-stop legislative work and happy to take... Continue reading »
News:
Advocacy
Celebrating ALS Awareness Month with Real Progress
For decades, the outlook for people living with ALS (amyotrophic lateral sclerosis) was heartbreaking and... Continue reading »
Federal Funding Cuts Threaten Mental Health Access
May is Mental Health Awareness Month, a time to remind the public that mental health... Continue reading »
The Other Side of Saving Lives: How Organ Donation Falls Short for Minority Populations
Organ donation saves thousands of lives each year, but not all communities benefit equally. Minority... Continue reading »
April 2025 Policy Update: Medicaid and…
The Coalition exists to improve access, affordability and representation for chronic disease patients. While the... Continue reading »
How Texas Can Fix the Coverage Gap with Affordable Medigap Plans
The ProblemIndividuals under-age 65 with End Stage Renal Disease (ESRD) and Amyotrophic Lateral Sclerosis (ALS)... Continue reading »
The Importance of State-Level Chronic Kidney Disease Task Forces
Chronic Kidney Disease (CKD) is a serious health crisis affecting millions of Americans, without them... Continue reading »
Medicaid Cuts Hurt Patients, Families, Economies and States
While state budget-writers are looking hard at their crystal balls to make their forecasts, Congress... Continue reading »
340B: What's Happening in Your State?
There are more than 60 340B bills working their way through state legislatures across the... Continue reading »