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Use your voice to spread awareness for important issues. We are always looking for patients who can share their experiences to evoke change.
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Learn moreRecent News
Why Rare Disease Month Matters to All of Us
Rare Disease Month in February recognizes the nearly 30 million Americans living with one of... Continue reading »
How to Support Those with Heart-Related Conditions
My first fainting episode happened under the fluorescent paneled lights of my biology class on... Continue reading »
Living with Rheumatic Heart Disease as an American Teen
Until I was around 12 years old, I was considered a generally healthy kid, with... Continue reading »
Legislators Heard From Us (But They Really Want to Hear From You!)
Last week, we sent our legislative priorities to more than 7,000 legislators across the country.... Continue reading »